ibusinesslines.com
ibusinesslines.com July 22, 2017


USA doctor to meet with specialists treating Charlie Gard

17 July 2017, 04:31 | Myron Mathis

The 11-month-old suffers from a rare genetic condition but his parents say claims by his doctors that he is irreparably brain damaged are false

The 11-month-old suffers from a rare genetic condition but his parents say claims by his doctors that he is irreparably brain damaged are false

Alastair Sutcliffe, who is the professor of paediatrics, said that the 11-month-old's severe mitochondrial disease is "untreatable" and that gene therapy "is in its infancy".

Charlie's parents Chris Gard and Connie Yates are now making their case in the High Court seeking a ruling allowing their 11-month-old son to travel to NY for experimental treatment.

A judge overseeing the latest stage of litigation has agreed that Ms Yates can be present when experts meet to discuss Charlie's condition.

Writing for Sky News, legal commentator Joshua Rozenberg said that Charlie Gard's parents had achieved more during a week of High Court action than during the past five months of their legal battle with Great Ormond Street Hospital.

Ms Yates and Charlie's father, Chris Gard, want to be allowed to take their son to NY to undergo a trial therapy overseen by Dr Hirano.

Hirano was invited to make the visit after offering an experimental gene therapy he believes has a 10% chance of improving muscle strength and bringing a "small but significant" improvement to Charlie's brain function.

After a series of hearings and appeals in several courts, the European Court of Human Rights decided on June 30 not to intervene in the case, which upheld a British Supreme Court decision that the hospital could discontinue life support to Charlie and he could not be transferred.


Preliminary hearings were held at the Family Division of the High Court in London over the last week.

But Dr Hirano, 55, believes his experimental theory could give Charlie "11% to 56% chance of clinically meaningful improvement".

The parents have fought in court for permission to take the child to the United States for treatment.

In April the judge ruled in favour of Great Ormond Street and said Charlie should be allowed to die with dignity.

Charlie Gard, the terminally ill baby suffering from a rare mitochondrial disease, is at the centre of a legal tussle.

He argued that if the couple were rich instead of "ordinary people" their child would be free to receive treatment in the US.



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